Events and Campaigns: Highlights from Rare Disease Foundations

Akrutisinha03 Nov, 2025Health

There is a glaring unmet need in the field of rare diseases. The absence of knowledge, research, funding, and support for these conditions invariably leads to misdiagnosis, care disparities, and isolation for countless patients and their families. IndoUSrare is a non-profit organization dedicated to advancing research, advocacy, and collaboration in rare diseases through Patient Alliance and Corporate Alliance Programs. We aim to foster international collaborations between stakeholders in India and the United States, a vital step in our collaborative efforts to make a difference.