Promoting Rare Disease Awareness: The Collaborative Approach of IndoUSrare

Akrutisinha03 Nov, 2025Health

Rare diseases affect an estimated 400 million people globally, yet they remain one of the most underserved areas in healthcare. With approximately 10000+ rare diseases identified, most of which lack effective treatments, patients often face an extended, isolating journey toward diagnosis and care. IndoUSrare, an organization focused on addressing the needs of rare disease patients, is working to change this landscape through collaboration, research, and advocacy. At the core, we believe that no one should be left behind simply because their condition is rare.