Building Bridges: Enhancing Clinical Trials with Proactive Patient Community Involvement

Akrutisinha29 Dec, 2025Health

In the rare disease area, investigators and sponsors are beginning to recognize that progress depends on more than designing protocols and enrolling participants it requires dialogue, trust, and meaningful collaboration with patient communities. By working proactively with rare disease patient groups, advocacy networks, and patient organizations, clinical research can evolve into a model that is not only scientifically rigorous but also human-centered.