Advancing Healthcare in India: The Potential of Rare Disease Advocacy Groups

Akrutisinha29 Dec, 2025Health

India is home to millions affected by rare diseases conditions that often go unnoticed and untreated. The challenges are many: delayed diagnoses, costly treatments, and limited support. But amid these hurdles, rare disease patient advocacy groups are stepping up as vital voices, creating awareness, pushing policies, and connecting patients to care. Their work is shaping a new healthcare landscape in India, and their impact is growing stronger every year.