Why Is Education Important In Rare Disease Advocacy Efforts

Akrutisinha30 Dec, 2024Health

Rare diseases, often called "orphan diseases," pose unique challenges, affecting over 7,000 conditions globally, many of which are genetic and ultra-rare, impacting only a handful of individuals. Patients frequently endure years of misdiagnosis or remain undiagnosed due to the rarity of these conditions, and treatments, if available, are often inaccessible due to limited research and high costs.