Rare Disease Patient Advocacy Groups | RARE-X

Rarexdisease27 Oct, 2020Health

The Rare diseases patient communities have considerably transformed and evolved over the past ten years to facilitate the patients with medical conditions or potential medical conditions. Rare Disease Patient Advocacy Groups are formally organized groups with a mission and concept. RARE-X is bringing forward a technology platform and novel patient support that will generate more critical rare disease data and improve data quality.